Announcement

Collapse
No announcement yet.

Advance techniques

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    Tech Posts

    Hi TF-- I have never doubted your knowledge. I just doubt that you are posting it in the right place. As far as we know --thousands of people could have died by just stopping breathing because they have OSA. Such deaths are not always put down on death certificates as a result of OSA--so NO one can say that nobody has died from lack of proper breathing. I'm glad you had your little talk with a Dr who happened to agree with you. She was speaking to someone who obviously knew more about OSA than she did. Not all Drs are informed about OSA--which is the reason why so many of us go undiagnosed for years. She of course was one who is capable of handling her own care--but so many others aren't. Yes its a crime (Or at least a pity) that there are not more dedicated knowledgeable people in charge of OSA clinics in the UK. But that changes nothing. Some people should not handle their own care unless they are helped by someone knowledgeable who can test them and keep track of how things are going. This is a simple subject and it has a simple answer--tech stuff should have its own place in the forum for the sake of those who find it has to be done on their own. I don't agree to changing info on the CPAP machine without proper testing. (There will always be some who will be too impatient to wait the time it takes to get the tests or information.) But if its as you say "no one dies"--then why bother with a CPAP at all--they are not exactly easy to deal with. And do not even help some people at all. If you are correct why bother with DR's, Nurses, Clinics or Forums at all. Perhaps the Clinics should just not bother with the testing (which some people see as un-needed)--in which case the Clinics can just hand anyone and everyone a CPAP or APAP and say --Go ask TF how to use it. Sorry--I still say the tech stuff belongs in its own place on the forum. It will be worth moving it if it saves just ONE life. xx Berneta PS--I don't care about that Red Face thing at all--I am not easily bruised..

    Comment


    • #17
      no comment- my views are already known
      Resmed S8 Escape ll
      Resmed H4i Humidifier:
      Resmed Mirage 'Quattro' Full Face Mask/mirage micro nasal

      Comment


      • #18
        For anyone interested in changing settings on their machine go to
        http://s7.zetaboards.com/Apnea_Board/forum/16411/ but be careful doing things you don't know anything about. Remember it's YOUR health.

        Comment


        • #19
          OK - for the sake of argument and to try to bring you to the point, let's say I agree with you, tech stuff needs its own special place. We have a thread entitled, "Tech Stuff and Advance Techniques".

          A newbie or anyone else posts under "Masks" that s/he is being woken regularly by gales leaking from his/her mask. S/he has an APAP, no idea of the settings. Clinic no help, asks the question in the forum. We start with headgear adjustment - no difference. The next step is narrowing the operating band - reducing Pmax a little.

          The post is under "Masks" but we are now into 'tech stuff'. What happens next to the discussion? Do we put it on hold till James tells us OK to continue or he puts it into the new special location? Or do we continue to help the person seeking help?

          Whether you like it or not, our input to a CPAP/APAP is very basic - mainly low, medium or high choices for a variety of settings and then pressure settings. The algorithm is what does the hard work; we only input data to it. CPAPs are technical, end of. One's attitude to technicalities is what is at issue here when all the other emotionality is stripped out - that, and how you propose James should manage a Tech Stuff thread. I will answer a question requiring a tech stuff answer in whichever thread it is asked, out of respect for the questioner.

          TF
          Respironics REMstar 'M' Series APAP.
          Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

          Comment


          • #20
            ok

            Now we are moving a little here and I completely agree we cant keep asking for posts to be removed and yes of course topics are going to drift, just like me and berneta sometimes start talking about the weather lol. If we had a tec section then we could point people into the right area for help and it will also give the "Nerds" (No offence intended) there own area to talk tec stuff just like we have a section where some of us can discuss the price of food.

            Comment


            • #21
              So how do you propose James should run things?

              Please correct me if I'm wrong, but I can't recall a technical discussion that didn't start in a non-tecnical thread. In fact, I can't recall a technical discussion anywhere. The nearest would have to be different posters making technical contributions in answer to the same question, posed in any heading in the forum.

              Anyway, over to James to either do something or not do anything. You guys can't or won't tell me what your idea would look like and/or work like and I'm fed up with trying to get enough information in order to cast an informed vote, so - adieu.

              I wonder which way the Ludites would have voted?

              TF
              Respironics REMstar 'M' Series APAP.
              Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

              Comment


              • #22
                The high tech line

                I happen to think, that if it becomes needed to tell someone how to go into the clinical menu to do something that is usually done by educated people at a clinic--THEN it is time to advise the person having a problem that can't be handled simply, to go to the tech site for further more technical information. Do as you please whenever you please-- as James or another moderator has not stepped up to bat on this issue. Should something happen to someone who follows tech advice without testing and proper regulation-- it will not be something that I caused-- and I have emotionally spoken out against it. I will bear no guilt, or responsibility in the matter. I guess from now on its in the hands of the Forum Managers. I hope that the tech advice being given with such disregard, will do no harm to anyone. xx Berneta

                Comment


                • #23
                  I had replied in another thread that in principle I think it's a good idea to have a degree of separation for those very advanced topics. It will remain public, open and accessible, and I haven't planned it out exactly either, but by designating such an environment I'd imagine the following to happen:

                  - Those not interested can easily avoid this area
                  - Newbies browsing generally will not be intimidated by such topics, or unduly encouraged to jump in at the deep end right away
                  - We can put disclaimers etc. there if necessary
                  - Those interested in such advanced topics have a new place to monitor closely, being able to avoid the "newbie" topics, if they wish to avoid those

                  I think it's a win situation for all, without imposing any limitations for anyone. Nobody will have to jump through any more hoops than already necessary either. I feel it's both a responsible and a handy thing to have but as with anything, you are all free to disagree and cancel your monthly membership fees in disgust

                  Comment


                  • #24
                    Mmmmmm?

                    Theres that word again but in a different form. TF's been ranting about it now for weeks. Limitations! or as TF said gagging order to mention but a few. Having a seperate section has nothing to do with limits and censorship or limitations. As some of us have stated it would be a good idea to have a advance section and that was it.

                    I cant really be bothered anymore with it all after all the shite, thats why I started a group on facebook......

                    Comment


                    • #25
                      Thank You James

                      Hi James! I think you have come to a good conclusion on the techy stuff--one that should satisfy everyone concerned, and also protect Intus from any future unexpected problems. This will give newbies all the info they need without going into the technical stuff--but should anyone need it--it will be there for them. Thanks, xx Berneta

                      Comment


                      • #26
                        And now we have at least one private clinic and one NHS clinic each persuading newly diagnosed patients to adjust their APAP pressures for themselves - in addition to all the members of this forum and elsewhere who adjust their own.

                        Staying up-to-date with practice and equipment is so important, don't you think?

                        TF
                        Respironics REMstar 'M' Series APAP.
                        Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

                        Comment


                        • #27
                          An NHS clinic telling peeps to change their preasure? Can you give us the details please. I can certainly use that, which clinic will do thanks

                          Comment


                          • #28
                            Originally posted by Tigers Fan View Post
                            And now we have at least one private clinic and one NHS clinic each persuading newly diagnosed patients to adjust their APAP pressures for themselves - in addition to all the members of this forum and elsewhere who adjust their own.

                            Staying up-to-date with practice and equipment is so important, don't you think?

                            TF
                            SO I don't lose it again - http://forums.cpap.co.uk/showthread.php?t=2019
                            Respironics REMstar 'M' Series APAP.
                            Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

                            Comment


                            • #29
                              And another newbie being advised by the NHS to adjust his own pressure - http://forums.cpap.co.uk/showthread.php?t=2040
                              Respironics REMstar 'M' Series APAP.
                              Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

                              Comment

                              Working...
                              X