Newbie full of Nervs

[Sparticus]

Hi Philipb

So - would switching the machine off for a second or two and switching it back on again put it back to the start of the ramp?

TF

ps the machines are designed to operate between pressures of 4 and 20 cm H2O. Adjusting your pressure yourself anywhere between 4 and 20 cm is within the safety parameters designed into the machine. Your hospital has sent you home with a machine set at Pmin 4 and Pmax 20 so regulating your pressure yourself to reduce the Pmax is hardly going to cause you harm. The anti-DIYers would have you believe DIYing is dangerous but without displaying the slightest knowledge as to how or why. It is, of course, your choice whether or not to go DIY when you have your permanent machine. Most of us felt we had little to no choice because of less than adequate clinics - hopefully yours is a rare-ish exception and will prove more helpful and co-operative than they seem to have to date. It boils down to the same old same old - some of us can think for ourselves and others seem less able or just plain won't.

Thats absolutly one of the most stupid things Ive heard on here. Lets take that analogy and put it to my car, my car is set to do 0mph - 150mph it was made like that so what harm can I do if Im traveling at 150mph. "Try killing someone"

As I said Im "NOT" against people altering their machines but dont you think telling a newbie is taking things abit too far?

[Philipb]

To DIY or Not TO DIY that is the Question

Hi All don't want to start an Argument. But for the time being I'm happy to leave the machine alone and let the Technicians download the data. As a programer I know that modifying the system files could stop the data downloading and of cours that is the one thing I want to avoid (Even Though its quite unlikely).

I've got alot more on my plate at the moment that may just be connected to this problem. A viral infection that is doing it's best to wipe me out by upsetting my Blood Sugars Big Time (I'm Type 2 Diabetic). So my levels are up and down like a Yo Yo and today allone ranging from 10.9 mm to Off the Scale of the Tester ( Over 32 mm).

Feeling Like Death Warmed Up at the moment so I'm happy to leve it switched off and beet the Bug for Now. And Very Happy that they've managed to fit me in before my review appointment the following week.

However On friday when I see the Techies I will make it clear that if the machine tries to blow me up like a balloon again I WILL DIY.

Take Care
Philip

[Tigers Fan]

Hi Philipb

With a thread title like yours, this is no place for the DIY/anti-DIY discussion. DIYing does not, incidentally, have anything to do with software changes, only adjusting the pressure settings by pressing buttons up or down - all within the design spec of the machine.

Good luck with your cold (?) and blood sugar levels. Are you resting lots?

TF

[Tigers Fan]

As for jackyk and Sparticus

Q.e.d.


252525252525252525

[Sparticus]

Ignore Button Engaged!

legum servi sumus ut liberi esse possimus!

I suppose some people need pictures to understand a point. With TF arguing with even mods on other forums its fair to say that he's beyond saving!

The point we are trying to make is that YOU are liable for giving out advise on the forum. Do you see any discalmers on here? Do you see any statement from Intus about information given on this forum about liability. If some newbie comes on here and starts messing with his machine because of what you have said on here and it causes him complications, who do you think he will be suing? My point is you should not dish out advance problem solving to people who are just learning about mask leaks. Philip of course is a different kettle of fish all together, he has the knowledge to do the advance stuff, but poor dorothy from the corner shop doesnt!

Lets see you tell a diabetic to up there insulin before bedtime or someone with asthma to up there ventalin.............

[Fredxx]

Thats absolutly one of the most stupid things Ive heard on here. Lets take that analogy and put it to my car, my car is set to do 0mph - 150mph it was made like that so what harm can I do if Im traveling at 150mph. "Try killing someone"

As I said Im "NOT" against people altering their machines but dont you think telling a newbie is taking things abit too far?

That analogy doesn't quite work in the way you intend although it is closer to the truth than you think...

The supplying garage has not adjusted the car settings, so it will randomly decide to go up to 150mph when you are using the accelerator

You change the setting so it will only randomly go up to 100 mph

From your statement, it is more dangerous for the car to randomly go to 100mph than to 150mph...really?

The fact is that the clinic has supplied a machine that will ramp up to 20 (standard pMax). That setting is causing problems and meaning the person is not getting effective therapy.

The only way you can change that is downwards. The risk from changing it to say 15 is that the pressure may not be at a level where it is providing therapy, in which case the machine will detect this and the clinic will know to increase the pMax.

To be clear about it though, I am not advocating self adjustment of machines unless the clinic is not providing effective support. However I would suggest to someone not getting effective support from their clinic that they get actively involved in understanding their treatment and optimising their therapy!

As for liability, whilst you may have a moral liability as someone not proclaiming to be a trained expert, chatting and giving advice on a users forum, it is my understanding that you do not have liability in law in the UK. Fortunately we do not have the same attitude to litigation in the UK that they do in the US.

[Tigers Fan]

"Freedom!", cried Mel, as he slit the throat of the local law man (albeit with savage good cause).

And .....

Britons never, never shall be slaves, don't y'know?

Cicero, eh?

[Philipb]

Missing the point

Sparticus
You're missing the point here and your examples clearly have no reference to the issue.

Perhaps I should clarify, I have a business Degree part of which covers Scottish Business Law and in Detail "Delict" (Civil Law Liability).

Obviously if sombody was to advocate Take Extra Insulin at bed Time the consequences could be fatal. That is not the case here as the most likely outcome of reducing the Maximum Presure of a CPAP Machine is that the user is likely to wake up during the night due to Apnia. Most of us have experienced this for years before getting a machine, so this is ulikely to cause any Damage (Injury) to which a financial value can be put.

Furthermore it is clear to any "Reasonable Person" (Legal Term) that this is a lively debate between interested adults with minds of their own who can make their own judgements and your own posts to this debate clearly provide an oposing view.

As for myself, I am an individual who recongnises that doctors, Nurses, and other health professionals are human beings capable of error. As a result I no longer regard their recomendations as Law only as a suggestion to be followed if I fully Agree. This is not the place to discuss my resons for that.

However to keep you happy can everybody please read the following paragraph.

WARNING: THE VIEWS AND STATMENTS IN THIS THREAD ARE THOSE OF INDIVIDUALS WHO MAY NOT HAVE MEDICAL TRAINING. NEITHER ARE THEIR VIEWS REPRESENTITIVE OF THOSE OF CPAP.CO.UK, ANY MEDICAL EQUIPMENT MANUFACTURER, OR QUALIFIED MEDICAL PRACTICIONER. ANY PERSON FOLOWING ADVICE PROPOSED ON THIS THREAD THEREFORE DOES SO AT THEIR ONW RISK. NO LIABILITY CAN BE ACCEPTED BY THE THREAD OWNER OR ITS PARTICIPANTS.

[Philipb]

Odd

Weird.
I've just typed an long winded post to this forum and got a message that it will not display imediately untill it has been checked by the forum.

Odd. I do not think I was advocating world domination and mass extermination of technophobes.

[Tigers Fan]

Fear not! the moderator function throws a bit of a wobbler every now and then in that it behaves in unexpected ways. Your long post may have triggered its curiosity and caused it to pull your post for James' attention.

It will appear in 'due course'.

TF

[Philipb]

Yes I think the Key Word to avoid starts with CP continues AP with a Couple of Dot's and a co uk. (That should have broken it up sufficiently to not trigger the its curiosity.

As Suggested by another user I mearly added a le gal dis claim er.

Am I getting Paranoid!!!!!!!!!

[shuckie]

Hi Philipb!

Any further updates on how you're getting on with your APAP/CPAP these days? I hope the clinic have been able to resolve the pressure issue for you, possibly in conjunction with changing ramping and/or EPR settings if appropriate.


Cheers

shuckie

[mochynbach]

i have had my cpap for just over a week still finding it difficult to sleep, keeep telling my self to sleep! still tired as I have not really felt as if i have slept! my eyes fel tired etc i am beginning toget anxious about the cpap any thoughts

[Tigers Fan]

Hi mochynbach

and welcome!

Perseverance! Eventually, it all comes good for 99.9% of people.

Quite naturally, your brain rejects the very idea of CPAP. So - comvince your brain! The usual route is to wear your mask whilst watching TV, reading, etc. When you are accustomed to that, add the machine and switch on - use it whilst alert and awake. Theory is that your conscious mind gets used to the rig and that your unconscious mind will better accept it when you try/fall asleep.

Another advantage of this method is that you can practise fitting your mask - find out fwhat causes leaks on your face and what stops leaks.

TF