Nocturnal Epilepsy

[peejay1959]

I was diagnosed with OSA last November and Got a machine in December. (Resmed S8). Well I had problems keeping the mask on and my wife says I'm thrashing around. Also, still feel really rough during the day. So I went back to the Doctor at Oxford and they had me in for a second sleep study. They think I have Nocturnal Epilepsy. Yikes!!! Now got to go and see a Neurologist...

[Joe McManus]

Hi PeeJay and welcome to the club.

Nocturnal Epilepsy sounds scary indeed, not something I've seen mentioned around here before. I wonder how a CPAP mask would have an effect on that.

Did the second study show any improvement post-CPAP?

[JackTheSnorer]

I had to look that one up myself!

Is it Nocturnal frontal lobe epilepsy (NFLE)?

[peejay1959]

The CPAP has stopped the OSA, at least when I can keep the mask on.

The epiliepsy hasn't yet been confirmed, my wife has made the observations and the the Sleep doctor has reffered my to a Neurologist, waiting for the appointment. So, I'm not on any medication for it.

[SteveP]

Just a quick guide for you as your waiting to see consultant regarding the epilepsy ,get the wife to make a diary of events that happens each night when you go to sleep if possible .
Things to include ,time and date ,what happened,how long it lasted,what parts of body moved and which sides of body, any little thing can be important to a consultant just that when you do finally get the appointment to see them which could be a few months the first thing they will say is how /when did it last happen or whats happening? .Hey presto you pull out the diary and its all there for them so they can see it.

WOW !! You're a connaisseur! Superb tip.

[acebass]

The man is just overflowing with information, bravo.... keep it coming, we'll be studying for doctorates by the end of the year at this rate :

[peejay1959]

Thanks Nuneaton,

Wife is keeping a diary, and I have an appointment on 28/3.

Pete