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Hi all,
Apologies in advance for the long thread!
I'm 51 and always suspected I had apnoea, but didn’t like the sound of CPAP so never did anything about it. This was despite never feeling like I had slept well, even as a child (always very active and sporty; I just pushed on through the tiredness and 'got on with it').
Always been a heavy snorer, too. Not overweight, don't smoke, and very rarely drink.
That ability to carry on seemed to leave me a couple of years ago, and the day time fatigue just got too much. I drive alot for work, and was noticing I was a danger of falling asleep at the wheel on longer journeys. I was also nodding off in the office, and felt I couldn't focus properly.
Fast forward to Jan '23 and I went to my GP. He very confidently stated that I could not possibly have Apnoea as I am not overweight. It took several months of me essentially hassling him for him to relent and refer me on to a sleep clinic.
They tested me, and it turns out I do have mild to moderate apnoea (15 an hour), and was put on a waiting list for a mask. That took a few months to arrive, and I have been using a Philips Dream Station for a few months now, with a full face mask (mouth breather at night).
At first, I couldn't even go to sleep with it on. It just felt totally alien to me. I didn't like the sensation of the air being forced into the mask. It took a few weeks for me to fall asleep with it on, but then I'd wake up in the morning with it on the floor, with no recollection of taking it off.
After a month or so, I could finally fall asleep with it on, and most nights, it stayed on. But, I kept being awoken by the coldness of the air, and by dehydration. The sleep clinic eventually gave me a humidifier, but this took a month or so. I also bought myself a heated hose.
I have this set up for around a month now, and I am not getting any quality sleep at all. In fact, I feel worse than I did before I ever had a CPAP. I am routinely falling asleep during the day now. As soon as I stop for more than 10 minutes, I fall asleep. I feel drunk every day.
I've been signed off work for 4 months now and am getting very anxious about that. Also very worried about being asked to surrender my driving licence by the DVLA (my understanding is they will after 3 months of unsuccessful treatment; I'm close to this time frame already).
My issues with the mask etc is that it is just really uncomfortable to me. I really don't like the feeling of a mask on my face. I tend to move alot at night, and regularly change my sleeping position. This means that the mask hose often gets wrapped around my neck, and I am waking up alot wrestling with it.
I try to sleep on my side, but find that if I am not lying on the very edge of my pillow, the pressure of my bodyweight on the mask and pillow means that I lose the seal on the mask and the sensation and noise of the escaping air also wakes me up.
I have always been a light sleeper, but this mask is really not working for me. The noise, sensation etc etc are all too much for me it seems.
Good news is the mask is reducing the number of apnoea (from 15 to between 4 and 6 per hour) but it now seems that I'm not sleeping due to the mask.
I have a smart watch that tells me that the most continuous sleep I get is 1 hour. I may get 2 or 3 of these a night. The rest is 20 to 40 mins here and there. Some nights I don't even get 1 hour.
I have told the sleep clinic all this, and they just tell me I will get used to the mask eventually; they say this may take 6 months.
They have referred me on to another specialist for an overnight hospital assessment, but not sure what this will achieve. I think CPAP is the gold standard in treatment? I have all the kit they can give me.
Not sure what else I can do.
As it stands, my life is on hold, and I feel dreadful. As I say, worse than before I started the treatment.
Any advice, support or insights will be gratefully received.
Thanks in advance.
Dave
Apologies in advance for the long thread!
I'm 51 and always suspected I had apnoea, but didn’t like the sound of CPAP so never did anything about it. This was despite never feeling like I had slept well, even as a child (always very active and sporty; I just pushed on through the tiredness and 'got on with it').
Always been a heavy snorer, too. Not overweight, don't smoke, and very rarely drink.
That ability to carry on seemed to leave me a couple of years ago, and the day time fatigue just got too much. I drive alot for work, and was noticing I was a danger of falling asleep at the wheel on longer journeys. I was also nodding off in the office, and felt I couldn't focus properly.
Fast forward to Jan '23 and I went to my GP. He very confidently stated that I could not possibly have Apnoea as I am not overweight. It took several months of me essentially hassling him for him to relent and refer me on to a sleep clinic.
They tested me, and it turns out I do have mild to moderate apnoea (15 an hour), and was put on a waiting list for a mask. That took a few months to arrive, and I have been using a Philips Dream Station for a few months now, with a full face mask (mouth breather at night).
At first, I couldn't even go to sleep with it on. It just felt totally alien to me. I didn't like the sensation of the air being forced into the mask. It took a few weeks for me to fall asleep with it on, but then I'd wake up in the morning with it on the floor, with no recollection of taking it off.
After a month or so, I could finally fall asleep with it on, and most nights, it stayed on. But, I kept being awoken by the coldness of the air, and by dehydration. The sleep clinic eventually gave me a humidifier, but this took a month or so. I also bought myself a heated hose.
I have this set up for around a month now, and I am not getting any quality sleep at all. In fact, I feel worse than I did before I ever had a CPAP. I am routinely falling asleep during the day now. As soon as I stop for more than 10 minutes, I fall asleep. I feel drunk every day.
I've been signed off work for 4 months now and am getting very anxious about that. Also very worried about being asked to surrender my driving licence by the DVLA (my understanding is they will after 3 months of unsuccessful treatment; I'm close to this time frame already).
My issues with the mask etc is that it is just really uncomfortable to me. I really don't like the feeling of a mask on my face. I tend to move alot at night, and regularly change my sleeping position. This means that the mask hose often gets wrapped around my neck, and I am waking up alot wrestling with it.
I try to sleep on my side, but find that if I am not lying on the very edge of my pillow, the pressure of my bodyweight on the mask and pillow means that I lose the seal on the mask and the sensation and noise of the escaping air also wakes me up.
I have always been a light sleeper, but this mask is really not working for me. The noise, sensation etc etc are all too much for me it seems.
Good news is the mask is reducing the number of apnoea (from 15 to between 4 and 6 per hour) but it now seems that I'm not sleeping due to the mask.
I have a smart watch that tells me that the most continuous sleep I get is 1 hour. I may get 2 or 3 of these a night. The rest is 20 to 40 mins here and there. Some nights I don't even get 1 hour.
I have told the sleep clinic all this, and they just tell me I will get used to the mask eventually; they say this may take 6 months.
They have referred me on to another specialist for an overnight hospital assessment, but not sure what this will achieve. I think CPAP is the gold standard in treatment? I have all the kit they can give me.
Not sure what else I can do.
As it stands, my life is on hold, and I feel dreadful. As I say, worse than before I started the treatment.
Any advice, support or insights will be gratefully received.
Thanks in advance.
Dave
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