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  • New Member Experience

    Let me first say thank you to the Forum admin and members for this fantastic resource for OSA sufferers. Its one of the few places on the internet where I've found useful answers.

    A bit about me.
    I'm just about to turn 50, 6ft and 100Kg. Been diagnosed Type 2 diabetic several years ago. I'm also on medication for some other unrelated health issues.

    My CPAP story.
    I think its a pretty typical scenario, falling asleep ALL THE TIME! Even at work in meetings - very embarrassing. Getting up to go to the toilet 12 or more times in the night - which I thought was the diabetes.

    My GP referred me to the sleep clinic at the London Chest Hospital. They gave me a home monitoring kit which I used for one night and then dropped off the kit the next morning. That afternoon I got a phone call from the hospital "We want you to come in". "Sure when?". "Tomorrow!". So I did. They explained that my results were so bad, and my my blood pressure was getting so high they were worried I would have a heart attack.

    So I spent they next 3 days in the hospital. The ward was a dedicated sleep unit with 5 or 6 other men in a similar situation to me. Some in more difficult situations, needing to resolve the OSA so that they could have heart surgery.

    I thought "they are all snorers, I will never sleep in here". The first night they put a full face mask on me and turned the machine on. I have to say at first I felt panic and very uncomfortable. However, the nurses were very understanding and professional. They advised me to concentrate on my breathing and count my breaths. This seemed to work and after a few minutes I was asleep. Imagine my surprise when I work up THE NEXT MORNING. My first full nights sleep for probably more than 10 years. For me it was truly incredible. OK so my mouth felt and tasted like the bottom of a parrots cage, but I thought that was a small price to pay. Apparently the first night is a monitoring exercise where they work out what pressure you need, and then the next couple of nights they iron out any kinks and let you get used to the mask and the machine.

    I adapted to the machine pretty quickly, but other people had problems with the mask or the pressure. One guy went asleep ok, but kept on taking the mask off in his sleep. I really felt for all these guys and their battles.

    I got the machine home and after a while got a humidifier attachment which helps a bit with the dryness - but its still an issue - albeit a minor one. My only other gripe is an ache in the chest, this went away after a couple of weeks or so, and occasionally returns if I use the machine for too long (I think this a pretty common side effect).

    The pressure on the machine says 12.5 whatever that means, I think that is high, but I've not much to compare that against. The machine says it gets about 6.5-7.00 hours use a night, which I think means I'm sleeping for that amount of time - which is great. I've lost a little weight, but know I could have lost more. I certainly have a lot more energy nowadays.

    And the best thing is I don't fall asleep during the day. EVER!

    Thanks

    Mike

  • #2
    Hi Mike, welcome to Hoseheads anonymous. Glad to hear you are taking to your new best friend so well, success stories help everyone who is worried about having to start therapy.

    Its amazing the difference in energy levels you get to the way you felt before but there are drawbacks...for example if you are on a plane when they get to the oxygen masks bit you will automatically start to feel sleepy.

    You have the advantage of me , not having ever tasted the bottom of a parrots cage but I'll take your word for it. The chest pain is a common complaint, seems to be because you are breathing out against something trying to push air in that the muscles round your lungs are getting excercise while you sleep.

    Most of us seem to have favourite tweaks on how to use our machines (mine is called Gail , as in gale force wind) re hose lifts, remzz and my own is to use a gel mask alternating with a sleepweaver so that diff bits of my face get abused in rotation, and anything you find works, pop it onto the forum as all info is good

    Hope it keeps going well

    Comment


    • #3
      Well done Mike.
      The bottom of a parrots cage eh
      12.5 I think is low side of average, a lot are higher than that.
      Good to see you are coping with it all.
      Welcome to the forum.

      S2S I
      S2S - Sleep2Snore

      Comment


      • #4
        Couple more newbie questions...

        Originally posted by Sleep2Snore View Post
        Well done Mike.
        The bottom of a parrots cage eh
        12.5 I think is low side of average, a lot are higher than that.
        Good to see you are coping with it all.
        Welcome to the forum.

        S2S I
        Well, thats what I imagine it tastes like

        How do people sanitise their masks and tubes? I wash mine with liquid soap (as per advice from the hospital). But I don't think its up to the job, without being too blunt - I'm getting a bit of "mask pong".

        And lastly, what about the sponge air filter, how often do people change theirs?

        Thanks to all.

        Comment


        • #5
          Shampoo things taken from hotels (kept specially) and warm water, about every three days. Not the strapping. Remember to do the humidifier as well.

          There is a line on the filter to give you a colour comparison , when the line vanishes its yuck time but i vacuum mine well before that.

          Comment


          • #6
            As long as it is not a gel mask, I wipe things with a baby wipe (watch the wipes that you get that are wrapped individual as they tend to have a high alcohol and can damage the seal of the mask) And wash mask, hoses, humidifiers in liquid dish soap. Never had any problems. One thing I did find with some masks is there was atendency for mould to grow on the vent/vents on the mask. The mold/fungus was very fine and not easy to see, but it did have a slight odour, I cleaned the vents with a soft toothbrush. If you eat garlic you soon know about it when you get a whiff of your own breath from the mask.
            Filters depends on the type you have. The foam ones on my last machine had one course and one fine one, I used to wash them (after cleaning off what I could by hand) but I have seen filters that won't survive rough handling, so common sense dictates how you clean them. The filters I have now are so flimsy it is almost impossible to clean them properly so every few times I clean them they get thrown.
            S2S - Sleep2Snore

            Comment


            • #7
              Hi Gizmo 2005, it is great to hear that CPAP has made such a vast improvement on your day to day life! In terms of mask cleaning, we have various products that may be helpful to you if you feel that using soap and water isn't doing the job. Citrus CPAP wipes are especially made for use with CPAP equipment, being alcohol free, and are very handy for cleaning your equipment. We also have a spray version as well, so whichever suits you!

              In regards to filters, it is advised to change the ultra fine filters (often white) once a month, and the coarse filter (often black/grey) every 6 months. It is also recommended to clean the foam filter every 2 weeks or so.

              I hope that your success with CPAP continues, so keep up the good work, and let us know if there is anything we can help you with.

              Comment


              • #8
                Well done Gizmo - 12.5 is a fairly low pressure - and that's good. Personally I don't bother sanitizing or cleaning any of my equipment. I think that my body needs to develop defences against the micro-organisms that are obviously breeding in the equipment! I am not usually a slob - just in this. I haven't had a cold, or chest infection, or anything at all like that since starting therapy over two and a half years ago..
                DeVilbiss Sleep Cube DV54 Auto
                Sleepweaver

                Comment


                • #9
                  Hi and welcome.

                  I deal with the "mask pong" which mainly comes from the humidifier on my machine by giving the mask humidifier and hose a clean with a milton tablet (baby equipment steriliser stuff) every week or so, and using a kettle descaler on the humidifier tank when visible limescale appears.

                  Wash the contact parts of the mask daily with whatever you wash your face with, plain water, soap, shower gel whatever.

                  Comment


                  • #10
                    Thanks to all for your advice.

                    Comment


                    • #11
                      Don't forget we are all working things out as we go so if you come up with anything that works for you please let us know. Also any humour to do with the subject is always welcome (laughter isn't the best medicine but it's gotta be in the top 10).

                      Comment

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