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After a lifetime of drowsiness ......

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  • After a lifetime of drowsiness ......

    Why oh why wasn`t my sleep apnoea discovered before? My life has been blighted by fatigue - people thinking I`m lazy, can`t wake up, always yawning, never having any motivation.

    My husband and I divorced years ago - my snoring wasn`t the reason but it didn`t help matters - me snoring and him grinding his teeth and having restless leg syndrome! And of course, since our divorce, I could never have a relationship because just one night with me and any man would head for the hills! My husband used to say I stopped breathing for long periods of time and my sons have also said I stop breathing when I`m asleep.

    As the years went on I got weaker and weaker - depression, muscle pain and weakness, thyroid problems etc. Trying to get to work each day was like climbing a mountain - I could never understand why other people could get up so easily. I eventually had to retire early at 63 just totally knackered. My GP could only dish out anti-depressants which have only made matters worse. Then last year I had to plead with her to get something done - I don`t think she believed how tired I was. I was then sent from one medical department to another, trying to find out what`s wrong. It was a rheumatology consultant that queried the fact that I snored and sent me to the respiration department. The consultant there didn`t think I had sleep apnoea because I`m slim but said they`d do a sleep test anyway. And bingo, I do have sleep apnoea AFTER ALL THIS TIME ! What would my life have been like if I`d known before? I have snored all my life - my brother said I snored as a child and I remember not being able to stay with friends because of my snoring. My sons have now told me that I`ve always snored and its just what they`ve always known - in fact one son said it was comforting to stay at my house one night and hear me snoring ! Another son said he didn`t like to tell me in case it upset me.

    I am really relieved that they`ve found out what`s wrong and that it can be treated, but there`s also a sadness at so many lost opportunities. Just hoping that I will be able to get some deep recuperative sleep and my muscles will get repaired.

    btw - I`ve since found out that a small lower jaw can cause sleep apnoea, which is what I have, plus a low soft palate and split uvula.

  • #2
    I also feel this sadness but this means that I will not stop using CPAP no matter what.
    Last edited by silvercarper; 5 April 2011, 19:32.
    Resmed S9 Autoset
    Resmed H5i humidifier with Climateline
    Resmed Quatro Fx and F&P Forma masks

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    • #3
      Sadly, your sad story is all too familiar with so many of us, Patsyw. But now for the rest of yourt life, full of energy and good sleep.

      TF
      Respironics REMstar 'M' Series APAP.
      Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

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      • #4
        Hey you twos - thanks

        I think I just had one of those `what if` episodes....... which are no good to no one. Promise I won`t do it again.

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        • #5
          You've been through some tough times, but the life to live is the one you have in front of you, not the ones that might have been.

          In front of you now is successful treatment of your sleep apnoea, giving you your energy, fight and life back. Good luck with your new best friends, the mask and the machine...and trust me, prospective partners that are worth their salt will worry less about the machine than they would about you snoring! (just make sure you tell them before the first night!)

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          • #6
            Originally posted by Fredxx View Post
            You've been through some tough times, but the life to live is the one you have in front of you, not the ones that might have been.

            In front of you now is successful treatment of your sleep apnoea, giving you your energy, fight and life back. Good luck with your new best friends, the mask and the machine...and trust me, prospective partners that are worth their salt will worry less about the machine than they would about you snoring! (just make sure you tell them before the first night!)
            Ha ha Fredxx - too old for all that nonsense now anyway. Quite content with just me and my dog. Looking at things positively, I could say snoring and sleep apnoea have `kept the wolves from the door` and been a blessing in disguise - its good on my own !

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            • #7
              Originally posted by Patsyw View Post
              Why oh why wasn`t my sleep apnoea discovered before? My life has been blighted by fatigue - people thinking I`m lazy, can`t wake up, always yawning, never having any motivation.
              This has been my problem too for years!

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              • #8
                Lifetime

                Hi Everyone, Sadly I have to add myself to the list of lifetime sufferers. I used to stay awake or sleep fitfully in bed at night, and take naps in my sandbox or at school, when I was 5 years old. Teachers take a dim view of children sleeping in class. In High School I took a thermos of strong coffee to school in my pocket bag. (Till I found out about NO-DOZE Pills) I fought it all my life--and was always tired all day. Couldn't go and do things with other kids after school-- because I had to go home for a nap--being a Cheerleader lasted a year, with me sucking down caffiene by the case of sodas, and by the coffee pot. Chasing toddlers and getting kids ready for school in the mornings wasn't much fun either. I managed to sleep a lot on weekdays. I am now 65 and starting my life over. And I'll be damned if I will give up ANYTHING that I missed just because I am 65! So everybody-- just get out of my way--I'm coming through. LOL.xx Berneta

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                • #9
                  Hey guys!

                  Before we get too deep into a "poor me" thread, let's remember that for most of us (not including CSA, Berneta or those unlucky slim sufferers) OSA is self-inflicted.

                  The most common cause of OSA? over-eating and ignorance (that OSA exists).

                  If we get fat, we risk OSA. If we get slim again, we may just lose OSA.

                  TF (still fat but now well aware).
                  Respironics REMstar 'M' Series APAP.
                  Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

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                  • #10
                    Originally posted by Tigers Fan View Post
                    Hey guys!

                    Before we get too deep into a "poor me" thread, let's remember that for most of us (not including CSA, Berneta or those unlucky slim sufferers) OSA is self-inflicted.

                    The most common cause of OSA? over-eating and ignorance (that OSA exists).

                    If we get fat, we risk OSA. If we get slim again, we may just lose OSA.

                    TF (still fat but now well aware).
                    Wow - `Poor me thread` .....Ever consider that such words might be rather hurtful for a newbie when, in fact, it helps to hear other peoples` past experiences and hear the optimism that things are coming right?

                    This forum is a real treasure find for me and has given me hope and understanding, so don`t really need to be told I`m doing a `poor me` just at the beginning of my diagnosis.

                    I am 5`8", weigh 10st.10lbs, and my neck is only 13.5" round. The cause of my OSA is a malformed soft palate and jaw.

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                    • #11
                      Originally posted by Patsyw View Post
                      Wow - `Poor me thread` .....Ever consider that such words might be rather hurtful for a newbie when, in fact, it helps to hear other peoples` past experiences and hear the optimism that things are coming right?

                      This forum is a real treasure find for me and has given me hope and understanding, so don`t really need to be told I`m doing a `poor me` just at the beginning of my diagnosis.

                      I am 5`8", weigh 10st.10lbs, and my neck is only 13.5" round. The cause of my OSA is a malformed soft palate and jaw.
                      Well said! I couldn't agree more.

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                      • #12
                        Does that make you one of the unlucky slim people with OSA, then, PatsyW?

                        Good luck with the rest of your life - we can help you with the CPAP aspects of that. What is done is done and beyond redemption and our help both.

                        If it helps you to listen to WoeBeGone stories, I feel sad for you. I suggest it would serve more purpose to celebrate that you are alive (OSA can be fatal in more ways than car crashes) and now have the wherewithall to reclaim an active life.

                        TF
                        Respironics REMstar 'M' Series APAP.
                        Resmed Mirage 'Quattro FX' Full Face Mask with a 'Quattro' headgear.

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                        • #13
                          What if OSA was caused by a car crash!!
                          Resmed S9 Autoset
                          Resmed H5i humidifier with Climateline
                          Resmed Quatro Fx and F&P Forma masks

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                          • #14
                            Originally posted by Tigers Fan View Post
                            Does that make you one of the unlucky slim people with OSA, then, PatsyW?

                            Good luck with the rest of your life - we can help you with the CPAP aspects of that. What is done is done and beyond redemption and our help both.

                            If it helps you to listen to WoeBeGone stories, I feel sad for you. I suggest it would serve more purpose to celebrate that you are alive (OSA can be fatal in more ways than car crashes) and now have the wherewithall to reclaim an active life.

                            TF
                            Well thats me told good and proper. Who are you - god?

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                            • #15
                              Lightning

                              Hi Patsyw, I don' t think we have many Gods on this forum--but now and then someone does toss a lightning bolt. Ususally its to remind us of what we do have--and not about what we have lost. The past is past and future still before us. But how we deal with it is up to each of us. xxBerneta

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