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Hi
Have been looking in for a while and its about time I said Hi
Have had my CPAP kit since February this year and it looks as if the problems I have had with masks are not unusual.
They say every man should have a hobby. Well I already have several and not looking for another, however it looks as if I am now starting a collection of CPAP masks . To date I have four , not bad in 8 months !! and from what I have read I would guess that there must be draws full of unused masks all over the UK.
The mask I am at present using is the Flexi Fit 432, (which was the second one I was issued with ) and Is the most comfortable except for over the bridge of the nose and that the outer shell is touching my eye lids most of the time. It was also leaking into my eyes, a problem I have now solved by tapping a piece of mask liner to the outside of the mask and over the bridge, very Heath Robinson but it seems to work. Incidentally, how on earth are you expected to refit those mask liners in the way they are intended to be used in the dark and when still half asleep, I gave up after the first night.
Now convinced that trying a new mask for five minutes , while sitting in a chair at the side of the Nurses desk is not the way to find the correct one. They feel fine until you put them to the real test.
So my questions.
At present I am managing on average about four hours a night, which I think I feel better for and from what the clinic said is about the same as many other users. Would be interested to know if many of you manage to go through a full night ? and should twice the CPAP use make you feel twice as good ?
I also seem to suffer from a dry mouth, which is what often wakes me. Other than the obvious of keeping it shut do you have any suggestions ?
Must look into the Resmed fitting sessions that I have seen mentioned on here. Any feedback on them and did you find a better mask as a result.
Also seen mention of Truefit made to measure masks in Australia, which sounds interesting. Can they be obtained in the UK and has anyone tried them ?
Should I continue to add to my mask collection in pursuit of the perfect one or am I being unrealistic and should just be happy to live with the one that is nearly ok ?
Not that this will help to solve my problem but why are masks that are still serviceable not put back into the system ? I fully understand the need for hygiene control but almost every thing else in the NHS is sterilised and reused . Why not masks ?
Apologies if I have rambled on a bit but any advice you can give would be helpful.
Steve
Have been looking in for a while and its about time I said Hi
Have had my CPAP kit since February this year and it looks as if the problems I have had with masks are not unusual.
They say every man should have a hobby. Well I already have several and not looking for another, however it looks as if I am now starting a collection of CPAP masks . To date I have four , not bad in 8 months !! and from what I have read I would guess that there must be draws full of unused masks all over the UK.
The mask I am at present using is the Flexi Fit 432, (which was the second one I was issued with ) and Is the most comfortable except for over the bridge of the nose and that the outer shell is touching my eye lids most of the time. It was also leaking into my eyes, a problem I have now solved by tapping a piece of mask liner to the outside of the mask and over the bridge, very Heath Robinson but it seems to work. Incidentally, how on earth are you expected to refit those mask liners in the way they are intended to be used in the dark and when still half asleep, I gave up after the first night.
Now convinced that trying a new mask for five minutes , while sitting in a chair at the side of the Nurses desk is not the way to find the correct one. They feel fine until you put them to the real test.
So my questions.
At present I am managing on average about four hours a night, which I think I feel better for and from what the clinic said is about the same as many other users. Would be interested to know if many of you manage to go through a full night ? and should twice the CPAP use make you feel twice as good ?
I also seem to suffer from a dry mouth, which is what often wakes me. Other than the obvious of keeping it shut do you have any suggestions ?
Must look into the Resmed fitting sessions that I have seen mentioned on here. Any feedback on them and did you find a better mask as a result.
Also seen mention of Truefit made to measure masks in Australia, which sounds interesting. Can they be obtained in the UK and has anyone tried them ?
Should I continue to add to my mask collection in pursuit of the perfect one or am I being unrealistic and should just be happy to live with the one that is nearly ok ?
Not that this will help to solve my problem but why are masks that are still serviceable not put back into the system ? I fully understand the need for hygiene control but almost every thing else in the NHS is sterilised and reused . Why not masks ?
Apologies if I have rambled on a bit but any advice you can give would be helpful.
Steve
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