Sleepweaver masks

[Fredxx]

Got my Sleepweaver mask yesterday and tried it last night.

As has been said, it is very minimal! You don't get much material for your money. but then the upside of that is that it was comfortable to wear, more forgiving if you roll over during the night, and you wake up in the morning without the traditional dents in your forehead. It did create a few squeaky balloon noises in the night, but nothing bad, other than that it is VERY quiet.

I have been using CPAP every night for the last 9 years, running a pressure of 16, and I think last night is as good a night with the mask as I have had in that time.

[dravidio]

I had a good night's sleep with the Sleepweaver last night. As I mentioned it won't let you mouth breathe - if you open your mouth the air is blown out through it and it is uncomfortable - so as an aid to stop me mouth breathing it is pretty good. I did tweak the lower pressure of my machine from 7 to 6 and that seemed to be OK. (You can get into the clinical menu of any machine to do this - the information is out there on the web)

[James @ Intus]

As they say "Less is more". Glad to hear you guys like them too. Please also post your SleepWeaver reviews on EU-PAP.co.uk or .ie so others can take your valuable views into account when considering this unique cloth mask.

[Pedallass]

One of you has PMed me after getting in touch with the clinic. That clinic didn't visit the BSS meeting I spoke of so they hadn't received a free demo and trial sample of this new SleepWeaver Advance. As this patient has now discussed this with the lung function technician at said clinic, we will send the clinic this sample, so they can check it out, read our information about it and then (hopefully) hand it to the forum member who told them about this mask.

Rather than sending it directly to this forum member, this route helps us get the clinics involved, get them educated on this innovative mask.

We are happy to extend this to other members who really want this mask, think they will benefit (as in, you can breathe through your nose) and who have a good relation with their sleep clinic.

As explained, some clinics already have freebies, we don't want to double up on these so these free masks are granted on a case by case basis, no promise made unfortunately.

PM me, or email us, with your clinic details and some "proof" that you have specifically discussed this mask with them, and the fact Intus are willing to give one to them for free, for you, if they are curious. They will also get a demo unit to keep there.

So you inform them, if they play ball you send us their details, we send them the mask etc. and then you get the mask from them when you next go there. You'll have to do the groundwork to earn the mask!

Do you know if more NHS clinics are stocking the sleepweaver? is it still worth asking for Intus (James) to send a trail? Am now about to start my third mask but still not getting on at all well and I have a gut feling sleep weaver would sort a lot of my problems. Thanks

[sleepynana]

As they say "Less is more". Glad to hear you guys like them too. Please also post your SleepWeaver reviews on EU-PAP.co.uk or .ie so others can take your valuable views into account when considering this unique cloth mask.

I picked up my new sleepweaver mask on Friday and am very impressed!.. it is so comfortable, and quiet and no blasts of cold air so I can sleep facing my partner or whatever position I like for the first time in 10 years! thank you so much, just what I have been waiting for. Takes a little tweaking to get the full seal as the first night I had some leakage but had a more successful night with it last night.

[Fredxx]

Had my Sleepweaver for a couple of weeks now, and starting to find the foibles...the biggest of which is the velcro on the headgear! On other masks I have had the hook part of the velcro has been a good couple of inches long, on the Sleepweaver it is only about 1cm.

The result of the short velcro section is that a few times now (4 times in 2 weeks) I have moved in my sleep and dislodged the velcro, releasing the mask with the customary balloon squeal that goes with this mask leaking.

It isn't a bad enough problem to stop me using the mask; other than this I am more than happy with it. Has anybody else had a problem with this and found a solution? Is there a good alternative headgear for it?

[Bob the Builder]

Fredxx,
I to found the straps a little short as well and just got them to wrap around and connect on. I have had the mask about 4 weeks and have now found after a couple of washes that the straps have stretched slightly so slightly more material can make a conection. Mine does not seem to come off in the night so I am assuming I don't move about much whilst sleeping. If the Velcro does start to loose its grip, as it is only connected on a short square, then my wife suggested that you can buy velcro tape and this can be sewn onto the existing to extend the connection. It's a bit of messing about but at £100.00 for the mask it is a cheap fix than anything else that you may be able to buy.
Darren

[dravidio]

My early positive experience with the Sleepweaver was not sustained I am afraid. I have to come to the conclusion that any sort of nasal mask is not suitable for a mouth breather. Sleepweaver is supposed to be working on a full face version and I think I will have to wait for that.

[Fredxx]

I guess my post about the velcro wasn't as clear as I hoped! lol.

The length of the part of the headgear that was through the mask; that is short, but still long enough just about. What I meant was the physical hooky bit of the velcro which is a lot shorted than other masks I have had, and doesn't lie as flat onto the fluffy part. I guess it isn't helped by the fact that the sleepweaver mask has to be strapped on tighter than gel masks in order to make the seal and stop the squeeling.

[James @ Intus]

Had my Sleepweaver for a couple of weeks now, and starting to find the foibles...the biggest of which is the velcro on the headgear! On other masks I have had the hook part of the velcro has been a good couple of inches long, on the Sleepweaver it is only about 1cm.

The result of the short velcro section is that a few times now (4 times in 2 weeks) I have moved in my sleep and dislodged the velcro, releasing the mask with the customary balloon squeal that goes with this mask leaking.

It isn't a bad enough problem to stop me using the mask; other than this I am more than happy with it. Has anybody else had a problem with this and found a solution? Is there a good alternative headgear for it?

Thanks for the feedback, not heard this one before. Luckily, because of the simple loop connection of the headgear, it will fit any headgear. One other gent had indicated he hooked up more traditional headgear to it so what we'll do is see which headgear really fits well and recommend them as alternatives.

[ElleCee]

I am finding my ears getting sore with the sleepweaver. But I still love it!
The straps go over my ear lobes, I cant get it to go below them.
Has anyone tried the side strap cushions and know if they would help?

Cheers
Lorraine

[Tigers Fan]

For a Quattro

Hi Lorraine

I have a set or two I bought for my Quattro - maybe they will fit your SleepWeaver?

If you think they will, I could mail mine to you.

I don't uise them as they bulk out the side straps too much for me as a side-sleeper. You'd have three thicknesses of fleece plus velcro in addition to the mask strap between your ear lobe and your pillow.

TF

[ElleCee]

Hi TF,
I would love to try them, is there anything I can send you in exchange? or will you be kind enough to let me pay for them?

Thanks, will send my address in a private message later.

Cheers my dear
Lorraine

[Tigers Fan]

Breakdown in communication

Hi Lorraine

Are you waiting for me to say/do something? I am waiting to learn your address.

TF

[Sleepy Pete]

I was given a Sleepweaver mask by the clinic today as I have had big problems getting other masks to fit properly.
I will give it a go and post my findings in a few days.