Sleepweaver masks

[sleepynana]

Sleepweaver masks

Hi everyone, I am new on here and this is my first post: I live up in the North and so far haven't seen anyone posting from here. I have had so many different masks in the 10 years since I was diagnosed it's embarassing!! however I have a great relationship with my sleep specialist nurse that we can have a good laugh about it!... I am really interested in trying a soft mask as I have awful trouble with the traditional ones.. and secretly I like the idea of pink!!!...my poor partner is very patient but ends up more tired than me because of all the strange noises I emit!!! I will contact Jaynie and see what I can do.
Nice to have contact with you all!
Jill.

[Berneta]

You got Blue so you wouldn't look stupid? LOL.

I think they out to put us all in A Star Wars movie! They wouldn't even have to fake the heavy breathing! LOL. I like black with silver studs-- Whoo Whoo.
Hey TF, Dragons don't mess with me---they don't stand a chance. Not even with chests of gold and words that melt chocolate.
Yes Keokuk, Iowa is my home town. Raised there most of my life. Basco, Illinois is where I live now--small farm of 20 acres. Always Just a country girl--and yes that's me on Face Book, I am not a retired Nurse. I am a retired Nurse's Aide, and worked the graveyard shift with the terminially ill, who wanted to die in the comfort of their own homes. I believe we all should have that choice--and someone who cares, to hold our hand when we cross over. Sleep Well tonight, Berneta

[Bob the Builder]

Sleepweaver Mask Success story

Grumpy,
I am new to OSA and was diagnosed a few weeks ago. I was given the Resmed Swift FX nasal mask and was using it for 2 weeks. I was continuously blocked up and trying all sorts of remedies and finding it very hard to get off to sleep.
I heard about the Sleepweaver mask and was so desperate for sleep deceided to invest the £100.00 to see how it performed.

I was disapointed when it arrived and I opened the packaging and wondered how it could be worth £100.00 but it is absolutluy fantastic. The first night I had 8 hours sleep and thereafter between 6 - 8 hours per night. It is very light to wear, there is no back presure whilst breathing out and even when i'm partially blocked up it is still easy to breath and fall asleep quickly. This is the best £10.00 I have ever spent and now i'm well on my way to clock up the hours and retain my driving licence!

I would recomend it to anyone

Darren

[James @ Intus]

Hi everyone
This is probably directed at James@Intus most of all - is there any difference in operation if an auto-CPAP is used (or even one of the Bi-level Auto-CPAPs from Respironics) as opposed to a fixed pressure device?
Are there any negative aspects to it at all apart from the usual ones that go with any other nasal mask?
How does it handle humidification?
I presume its washable/cleanable...

If I think of any other questions.......haha

Thanks
TB

Hi TB,

I assume this question is in relation to the SleepWeaver, not a question about the general difference between APAP and CPAP.

The SleepWeaver works the same with Auto-CPAP (APAP) and CPAP. Some feared the mask would 'collapse' with an auto-titrating machine but it didn't, as even the machine's lowest pressure of say 3 hPa is still higher than the atmospheric pressure. So the mask will never 'deflate' with the machine on.

Any downsides to the SleepWeaver? It's one-size-fits-most, so you can't pick petite if you are petite and you can't pick XL if you have a nose or head way beyond that of the usual OSA frame. One person so far found the headgear almost too simplistic and hooked up their own headgear form a standard nasal mask. That's your choice, it won't deny the other headgear as its loops will take any standard type headgear. That's about it really.

The cloth is like that of a parachute or sail if you like. It's very much humidifier-resistant so in that sense, behaves quite similar to silicone. It won't soak throughout like paper or linen.

Yes, washable just like most masks, dries quite quickly too.

[James @ Intus]

I am really interested in trying a soft mask as I have awful trouble with the traditional ones.. and secretly I like the idea of pink!!!

Hi Jill and welcome!

Which clinic are you with? If we can get in touch with the staff there, we may be able to send a sample.

[James @ Intus]

I was disapointed when it arrived and I opened the packaging and wondered how it could be worth £100.00 but it is absolutluy fantastic. The first night I had 8 hours sleep and thereafter between 6 - 8 hours per night. It is very light to wear, there is no back presure whilst breathing out and even when i'm partially blocked up it is still easy to breath and fall asleep quickly. This is the best £100.00 I have ever spent and now i'm well on my way to clock up the hours and retain my driving licence!

I would recomend it to anyone

Darren

Thanks Darren, great to hear another success story. Much like the RemZzzs, perhaps at face value, it doesn't look like much. But the proof is in the pudding, as you've experienced yourself. As we're in a giveaway mood, if you post your findings here on the SleepWeaver product page, I'll send you a mask cleaning spray to help you keep it fresh. That counts for other SleepWeaver users to, if you post it by Monday night. And do tell your clinic about it too so maybe next year when it needs replacing, you may be able to get it off the NHS.

[roblyn38]

I was diagnosed with severe OSA around 6 months ago and had been using initially a full face mask which I just could`nt get on with. I then changed to a nose mask which was an improvement but because I have excema it made my nose itch all the time and I really struggled.

I was at my wits end when I decided to bite the bullet and buy a SleepWeaver cloth mask.

The sleep weaver is very light and far less obtrusive than previous models. It does`nt irritate my excema as much and I can itch my nose easily without breaking the seal. The air pressure doesa`nt seem so severe with this mask and I can clean the mask very easily. I have been able to sleep far better with this mask!!

This mask has been a revelation; I really thought CPAP therapy was not going to work for me. The purchase has been a very good decision.

I`m hoping that the NHS will fund future sleepweaver masks because i would be lost without it!

[Harrymole]

I was diagnosed with severe OSA around 6 months ago and had been using initially a full face mask which I just could`nt get on with. I then changed to a nose mask which was an improvement but because I have excema it made my nose itch all the time and I really struggled.

I was at my wits end when I decided to bite the bullet and buy a SleepWeaver cloth mask.

The sleep weaver is very light and far less obtrusive than previous models. It does`nt irritate my excema as much and I can itch my nose easily without breaking the seal. The air pressure doesa`nt seem so severe with this mask and I can clean the mask very easily. I have been able to sleep far better with this mask!!

This mask has been a revelation; I really thought CPAP therapy was not going to work for me. The purchase has been a very good decision.

I`m hoping that the NHS will fund future sleepweaver masks because i would be lost without it!

Hi friend, this is my first attemt on this site. Very interested in this new sleep weaver mask, however the cost is putting me off. Just wondering how long this type of mask would last, do you have any idea, or does anyone else?

[Tigers Fan]

As it's brand newonthe market, no-one has long term experience yet.

[roblyn38]

Hi friend, this is my first attemt on this site. Very interested in this new sleep weaver mask, however the cost is putting me off. Just wondering how long this type of mask would last, do you have any idea, or does anyone else?

Hi Harrymole,
Welcome to the site! I too thought the price was high; but when you equate the cost to a good night sleep. I really was starting to panic that CPAP therapy wouldn’t work for me. The Sleepweaver really has helped turn my life around and now after 12 months off work I can contemplate going back!
The official site says:”How long will SleepWeaver last?
With normal care, SleepWeaver will last more than 6 months.”
I have had the mask for over a month now and it looks fragile but with reasonable care it seems to take the day to day knocks ok. I have washed the mask by hand twice with no problems. It takes a bit of getting used to when I did it the first time (but it’s not complicated).
Good luck with your treatment.
Gareth

[dravidio]

Right - my Joyce full face mask has finally fallen to pieces and, ever optimistic, I have ordered a Sleepweaver mask. There are two positive reviews on the Intus page. I haven't visited for a while and now notice there is a bewildering choice of new masks now. How to choose the right one? I am risking £100 in hoping for a more comfortable option with the sleep weaver when I could have played safe and gone for a replacement Joyce mask. I know bits of the Joyce mask can be replaced but mine has got multiple issues and is not worth patching up...I will let you know the results...

[James @ Intus]

Just wondering how long this type of mask would last, do you have any idea, or does anyone else?

Indeed, it's new in the UK so the longest people have been wearing it here will be about 2 months now. But in the US, prior to it becoming EU approved, it has been going for a couple of years. If you look in any Respironics or ResMed manual, they will tell you to replace the mask in 3 months, 6 tops. The official line for the SleepWeaver is indeed about 6 months. But experience overseas tells us that with proper care, there is no reason why you can't get a year or even 18 months out of it. In that sense, it's like most masks. If you are an active sleeper, it may reduce the life span. If you don't clean it regularly, or with the wrong cleaning agents, that may reduce it. If you sweat heavily, with a lot of skin oils etc. that may reduce it. So it's hard to say and will vary per person.

I'd be surprised if a careful person didn't get 9 months out of it. That would make it £0.37 per night (£100 / 270). At six months, you're looking at 55p a night.

[James @ Intus]

Right - my Joyce full face mask has finally fallen to pieces and, ever optimistic, I have ordered a Sleepweaver mask. There are two positive reviews on the Intus page. I haven't visited for a while and now notice there is a bewildering choice of new masks now. How to choose the right one? I am risking £100 in hoping for a more comfortable option with the sleep weaver when I could have played safe and gone for a replacement Joyce mask. I know bits of the Joyce mask can be replaced but mine has got multiple issues and is not worth patching up...I will let you know the results...

Yes, we've gone over 50 masks, which can make it a challenge to chose. We have a few website updates coming to help with that so for the time being, ask around here, read the reviews and ask us to help you narrow down the choice. Keen to hear how you get on with the SleepWeaver.

[dravidio]

The Sleepweaver has arrived. There's not much of it for the money! I may have to use my chin strap with it - as it is a nasal mask and I am a mouth breather. I knew that - I do have a nasal mask but have never been able to get on with the nose plugs.

Anyway - I just played with the mask this afternoon and tried it on. It fitted straight out of the packet and sealed with no need for adjustment, so looking forward to trying it tonight.

[dravidio]

The mask is certainly minimal. I found that it was not possible to mouth breathe when wearing the mask - the pressure was such that it made it uncomfortable. I fell asleep quickly but woke at 5 am to find I had removed it in my sleep - this sometimes happens - I put it back on again and slept for a further 3 hours, though felt bloated on waking. I think there might be a need to tweak the lower pressure of my APAP machine.