Hello everyone. I've been lurking here since about mid-June reading up on OSA and C/APAP and trying to absorb as much as possible. Why? Well... I've had a chronic snoring problem since I was a teenager - always been a bit of a joke with family and friends. Never really thought anything of it. My now wife was the first to point out it might be something more back in 2005 - although she can ususally sleep through my snoring pretty well, when she woke up in the night she noticed that I often would stop breathing. Once again I thought it was odd but as I felt fine I never really bothered about following it up. Fast foward to now and over the last 12-18 months I've become more and more run down. I wake up in the morning feeling like I haven't slept and often struggle in the afternoon at work. Put a new (now 2 month old) baby into the mix plus a couple of colds in succession and I could quite happily have died on some days I have felt so chronically tired. I was starting to think I was suffering a combination of diabetes and dementia! The OSA thing still never occurred to me. It wasn't until a chance conversation with an old work colleague who told me he was literally like a new man now and how he'd suffered back when I worked with him and it'd taken 20 years for various health professionals to diagnose him with OSA. I asked him what it was and of course everything then clicked into place.
My local GP was very responsive and referred me straight away to a local consultant. I was lucky that my work health insurance managed to bring themselves to cover the first appointment (though not the sleep study but that's another story) so I got seen within a fortnight. I did my sleep study Thursday night. For me this entailed picking up a breathing/chest/oxygen monitor from the local hospital, wiring myself up before bed, sleeping with it turned on and then dropping it off the following morning. Said consultant very kindly called me this (Saturday) morning and said that, whilst he'd seen worse, there was no doubt the study showed I had moderate OSA and that he was going to refer me to the London Chest Hospital early next week for putting on CPAP treatment. To be honest I am actually massively relieved - I was quite scared that the test would prove inconclusive or that I only had very mild OSA in which case what I am suffering (which looks like it has been a build up of lack of deep sleep over the long term) could be caused by so many other things.
This all leads me onto my questions which I am hoping I can get some good advice on. I am under the impression it will take a while for me to be seen by LCH (maybe people here can comment on this particular hospital?) and I really need to get this dealt with asap from a health and work perspective. It has been recommended to me that I try to wait until I'm getting treatment before I inform the DVLA - that might be ok if I am getting it within a few weeks but obviously not if it runs into months. And I need my driving licence!
I am considering potentially renting or more likely buying my first machine. As I haven't had an APAP test already (I assume when LCH get around to it that's where they'll start) I don't have pressures to be able to order a CPAP machine. I'm also very aware that my OSA is significantly worse when I have a cold or a sore throat (and truth me told if I've had a night on the booze as well). I can therefore see that I'd want to start and perhaps remain on an APAP. So... should I look to one of the rental places whilst I wait for the NHS to pull their finger out and keep the NHS machine as a a spare? Or, should I look to simply buy myself a decent APAP machine and do likewise with the NHS machine? I like the look of the Philips System One REMstar machines however I know that is only half the story. And where the hell do I start with masks? I can afford one but can't afford to buy loads of the things so I really need to if not get it 100% right first time at least get it 80%! I'm a mouth breather by the way... Do I actually need a prescription form to buy a machine? (It isn't like I am going to buy one of the bloody things if I don't need it!).
I would really value the advice of you guys who've been through all this before and likewise James @ Intus on possible options.
Now I've had this formally diagnosed I just desperately want to get it sorted out pronto.
Cheers - Dan
My local GP was very responsive and referred me straight away to a local consultant. I was lucky that my work health insurance managed to bring themselves to cover the first appointment (though not the sleep study but that's another story) so I got seen within a fortnight. I did my sleep study Thursday night. For me this entailed picking up a breathing/chest/oxygen monitor from the local hospital, wiring myself up before bed, sleeping with it turned on and then dropping it off the following morning. Said consultant very kindly called me this (Saturday) morning and said that, whilst he'd seen worse, there was no doubt the study showed I had moderate OSA and that he was going to refer me to the London Chest Hospital early next week for putting on CPAP treatment. To be honest I am actually massively relieved - I was quite scared that the test would prove inconclusive or that I only had very mild OSA in which case what I am suffering (which looks like it has been a build up of lack of deep sleep over the long term) could be caused by so many other things.
This all leads me onto my questions which I am hoping I can get some good advice on. I am under the impression it will take a while for me to be seen by LCH (maybe people here can comment on this particular hospital?) and I really need to get this dealt with asap from a health and work perspective. It has been recommended to me that I try to wait until I'm getting treatment before I inform the DVLA - that might be ok if I am getting it within a few weeks but obviously not if it runs into months. And I need my driving licence!
I am considering potentially renting or more likely buying my first machine. As I haven't had an APAP test already (I assume when LCH get around to it that's where they'll start) I don't have pressures to be able to order a CPAP machine. I'm also very aware that my OSA is significantly worse when I have a cold or a sore throat (and truth me told if I've had a night on the booze as well). I can therefore see that I'd want to start and perhaps remain on an APAP. So... should I look to one of the rental places whilst I wait for the NHS to pull their finger out and keep the NHS machine as a a spare? Or, should I look to simply buy myself a decent APAP machine and do likewise with the NHS machine? I like the look of the Philips System One REMstar machines however I know that is only half the story. And where the hell do I start with masks? I can afford one but can't afford to buy loads of the things so I really need to if not get it 100% right first time at least get it 80%! I'm a mouth breather by the way... Do I actually need a prescription form to buy a machine? (It isn't like I am going to buy one of the bloody things if I don't need it!).
I would really value the advice of you guys who've been through all this before and likewise James @ Intus on possible options.
Now I've had this formally diagnosed I just desperately want to get it sorted out pronto.
Cheers - Dan


). It would be good to have a guide. I know I'm not comparing like with like but if I order a new motorbike helmet there's a pretty standard sizing guide so you can measure your head in a specific place and then you know what size you need. Sure, it's best to try a few on due to manufacturer differences but you've a good idea. I wouldn't have a clue what size to order and I imagine that returns policy says you can't return if you've opened.
It's a bit noisy (the valve that allows you to breathe should the machine stop being the main culprit) but no worse than being on a 'plane. Not sure it was that keeping me awake though to be fair - I guess I was just overwhelmed and a bit depressed by it all once the initial excitement had waned.
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