may know why cpap dident seem to work

[jasonuk75]

Hi everyone

been feeling awfull since january i blamed it on cpap not working for me but found out on TUE in Diabetic type 2, now on meds METFORMIN, and tiredness has got better, sore throat has eased sleeping better cos blood sugers are dropping a bit, sooo how ill ive been feeling prob aint all down to cpap treatment, glad i know cos know hopefull can rep rewards of cpap propley

Jason

[Tricia]

Thanks for sharing that. I wonder how many other people who have problems with CPAP/still tired have an underlying health issue too?

[Richard]

More than one condition?

Hi Jason and Tricia

A patient referred to a consultant/sleep unit by his GP as a probable Sleep Apnoea case would undergo blood-tests in addition to polysomnography and chest x-rays. Unless there were other health issues already, he would remain a patient of the respiratory department alone.

On taking the initial blood sample, a whole range of tests could be carried out to determine any other conditions that may exist, and referred to the appropriate medical departments concerned.

If this were established as routine, then patients would have an immediate overview of their state of health and would be directed to a suitable course of investigation or treatment for any problems they might not be aware of.

It is my experience that hospital departments seldom 'inter-act'; when a respiratory problem is treated as a heart issue (for several years) wasted time inevitably results in a worsening condition for the patient.

Hospital departments cannot exist in isolation from one another, and a more 'joined-up' approach would produce greater benefits for both hospitals and patients.

[bassetman]

HI Jason,Tricia,Richard,
Jason hope you start to feel the full benefits of cpap soon!I have had to have my cpap pressure raised (autoset titration study) because of recurring somnolence,but have been told if this does't help i need to take modafinil. But to be aware that this may be the best i can get so hopefully the modafinil will help
I couldn't agree more about hospital depts communicating with one another (but that would make life easy and save money,and possibly someones health)

[Tigers Fan]

Just want to join in the NHS bash

You very nearly had me going there, Richard, with your first sentence - all those things that 'would' happen. Oh yes! in a different NHS!

What a notion! Joined up NHS! That means one consultant would have to know what another consultant is doing - so the chances are ......... somewhere between a snowball's life expectancy after five minutes to six minutes after arriving down there!

No more "Nothing wrong" because my symptoms are a few microns to the left or right of his speciality (women seem to be better at saying, "I don't know but I'll refer you on" in my experience.

Can we understand why the Yanks are so frightened of getting Federal Health? Yes, we can! - but what would we do without the NHS to whinge about?

TF

[Richard]

My local hospital, together with a hospital 10 miles away, is seeking to secure Foundation Trust status. As part of this they wish to recruit a board of governors from the 'users' side, and I was nominated to apply. At the initial evaluation meeting I casually asked 'How many are you looking to recruit?'

Back came the answer: 'Oh, we want a minimum of thirty-five lay-members.'

My enthusiasm deserted me at that point: the NHS comes in for a lot of criticism, much of it undeserved. But how on earth could you ever reach a meaningful decision from 35 hospital-users meeting once a month?

[ElleCee]

This is an interesting thread.
I was under the respiritory clinic for one appointment for my asthma and was discharged on the same visit because there is nothing more they can do for me. They dont seem to want to tell me why other people go to asthma clinics or have on-going assessment. I just got told there is no more help and to get on with it. I can only walk a few yeards without breathing problems yet I had never had it before getting pneumonia in August last year.

I thought that OSA came under that department so now I guess that as I have a cpap they are no longer interested in that either. I did have blood tests and my sugars came back high so my GP just said to have it done again in 6 months despite the fact that I am sleeping 14 hours a night and still tired in the day.
I also have heart problems evidently and am waiting to see the cardiologist in 2 weeks time but there is no talk of my problems being connected. I have tried to tell them but to no avail.
If I wasn't depressed before I sure am now. If life is not going to get any better then there is no point in struggling with all this. I just dont want to give up hope but when you are told there is none it is hard to accept.
6 months ago I was fit and well, I didnt have any of this.

[Alleycat]

ElleCee
Sorry to hear you are having so much trouble. If your getting 14 hours sleep a night on CPAP then it either isn't OSA causing the problem or your pressure is too low on your CPAP. Either way you should be checked out- from your CPAP clinic to see if it is the pressure (unfortunately I don't think the machine you have gives info on AHI to help see if this is the issue), but you should also get checked out by a consultant or your GP to look at other issues which may be causing your tiredness. Depending what your heart condition is then this may also be a cause and hopefully your cardiologist will be able to look into this. Otherwise, if no other cause can be found then you may need something like Modafinil. Good luck and I hope you get it sorted soon.

TF- if you hate the NHS so much why don't you go private? If you can't afford to - well that's exactly the poor folk Obama is trying to help with his health bill!

AC
x

[jasonuk75]

nhs not comunicating

Hi all ty for replies,
well, at last im feeling better but the last 3 months have pushed me to the end of my limits totally, its not i;m not arounds drs and nurses, now aving 4 diffrent chronic health conditions, being under 3 hospital consultants, taking 11 diffrent repeat prescriptions, adding up to 40 diffrent tablets a day
since xmas i;ve had every symptom of diabetes and no one tested me till now.
despite giving every opputunitty to drs and telling them something is very very wrong to explain
glucgose blood test came back as 25 high, 6 is classed as high
finger prick blood test was 18 normal is 6
told my suger levels were so high it was lethal sleep apnea is meant to be assosiatd with diabetes sleep clinic missed it too, consultants missed it too i agree patients esp new patients should be screen full for other health probs the oxi meter at home test i had sleep test may be cheaper but thry missed other probs in me which could of been dealt with, the last few weeks i lost the will to live thank godness i;m stubbern!! could feel my whole body shutting down, i dident sit at home worrying i sought help from drs/ consultants but no answers till now
know i know not all problems ive had are down to cpap side efffects it seemed that way so as things improve i;ll feel better on cpap
please everyone watch uot for diabetes symptoms increased thirst, dry mouth throat, extreme tiredness, increased toilet trips, thrush type infections, as i thuogh all these were cpap side effects, sleep apnea symptoms, some may be but not all as symptoms av improved a lot since going on diabetic meds on tue cpap is now effectice for me, wouldent want anyone to g through wot ive just been though ive really wanted to not wake up to face another day recently
Jason

[jasonuk75]

struggling on

Dear lorraine

sorry to hear wot ur are going through i have the pleasure of being under 3 diffrent hospital consultants!!! ive felt so many times they speak in riddles, dont listen r a law to themselfs and av walked out of a appointment feeling worst then when i walked in
if u feel u aint been treated fair by this consultant/ clinic and ur ashma is not been treated as well as it could be go back to ur gp, cos ur living this not the drs, what u got ot loose,?? u know ur body and when u r not right
i dident get answers treatment straight away but i kept on at them eventually things are getting sorted, i totally understand about feeling well if this is how things are wots the point,
i take that in myself as a sighn emotionall, mentally im overloaded with all this and somethnig needs to be done!
Jason

[Alleycat]

Jason
glad to see you're getting to bottom of things, sorry it's taken so long!
AC
xxx

[ElleCee]

Hi AC, Jason,

You are both right, I will be making an appointment on Monday but will make sure I see a different doctor, one that will listen (hopefully) this time.
If I dont do something real soon I will just hole up in my bed till it is all over for good.
I will let you know how I got on once I have seen him/her.
Thanks for the advice.

Lorraine

[Tigers Fan]

TF- if you hate the NHS so much why don't you go private? If you can't afford to - well that's exactly the poor folk Obama is trying to help with his health bill!

AC
x

You don't listen, Alleycat, just like everyone in this thread is complaining about in the NHS. I told you already, I love the NHS but despise the way it is run by beaurocrats and consultants who think they are god.

Listen! (read this thread) we are all whinging about not being listened to, being fobbed off. This is the common patient experience of the NHS. This is the common experience of US citizens on Medicaid.

I would indeed go private except for one thing, stubborn and stupid man that I am - I believe in the NHS, in free medicine at the point of use. I am appalled at the poor quality of service routinely handed to patients - and delighted at the success stories - and lay the responsibility at the feet of beaurocrats and consultants.

TF

[cheryl4andy]

diabetic

hiya ive been diabetic type two for eight years now,ive only been on the cpap for around six weeks or so.I have a few other conditions like high blood pressure,high cholesterol of which is fine if i take my tabs !!! i definatly had OSA for years undiagnosed, i knew i stopped breathing but didnt think it was serious!!! i was 38 an hour but am now down to 3 i feel great now its took me a long time to get used to it but i feel much much better xx

[ElleCee]

|Hi Jason,
I too have many consultants but they don't talk to each other, do yours?

Do you get a follow up appointments?
My sleep clinic seem to have forgotten that I exist now they think they have my machine set, despite telling me I needed a bi-pap last time I went.
I wish they would just tell me if there is a plan for the future or not.

Lorraine