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  • not impressed

    HI everyone

    i;m not impressed, just before xmas i started on cpap, first weeek was great then went onto loaned fixed pressure, things got worst, daytime sleepyness, then dry throat, so nhs give me a cpap with humidifier 2 weeks ago, it was worst, was not sleeping well with humidifier on changed setting on humidifier ect no improvment,
    then this week took mask off in my sleep and woke up feeling better!! so humidifier is off now.
    also few years ago test showed, magic eye that my throat was red and inflamed through acid reflux, fixed pressure is annoying my throat, making me thirst no amount of fluids is quenching my thirst, dry throat is making my mouth dry ect, i;m not diabetic all other bloods are normal, i;ve only had this prob since fixed rate cpap
    i;m not getting on with fixed rate cpap and have not for weeks i even had thrush last week in a personal part of my body!! gp put it down to being run down, and worn out so phiscally my boDy is saying i need a break here, but sleep clinic still wont give me auto
    wot is protocall if someone on fixed pressure is not getting on with it does NHS just leave u to struggle or do they have to offer something else
    sleep tech is very understanding good at listening but nothing is changing as in how rough i feel, ready to give cpap back and say i;ve tried for 5 weeks i cant get on with it, but dont wanna go back to high AHI, esp as apeneas are being treated but i feel awfull
    Jason
    remstar pro, m series
    4 h20 increasing to 14.5 after 20 mins
    fisher and paykel flexifit 432 comfort mask

  • #2
    Hi Jason,
    I saw my doctor on Friday and asked about apap and was just told that they don't do that one on the NHS and that the one I have will be fine when I get the right settings sorted out. Fortunately he will always see me at very short notice so I cannot complain.
    He adjusted my cpap Friday when I said I was waking up again and he gave me the wrist and finger monitor to use tonight to see how I am doing with the higher rate and I have an appointment at 7:30am tomorrow. I have to take my machine so he can make more adjustments of I need it.
    I guess I am just very lucky.
    Lorraine
    APAP: F & P Iconaax auto
    Masks: Resmed Swift FX, Sleep Weaver, Mirage Liberty and most other makes and models.

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